Click below to read the full paper.
Certain elements are critical to the health care that patients with cystic fibrosis need. The Cystic Fibrosis Engagement Network has identified those elements in its new Health Care Bill of Rights for Individuals with Cystic Fibrosis, released this week.
The document outlines four key rights.
The Cystic Fibrosis Engagement Network explains how FDA's fast track process benefits patients with cystic fibrosis and other rare diseases
What began as a safeguard against unnecessary drug spending has become a significant barrier to patient access.
Click the image below to read the full white paper.