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Cystic Fibrosis Engagement Network

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AfPA Digital
June 11, 2018

Preserve hope and access to life-saving treatments

AfPA Digital
June 11, 2018

Hope is a powerful elixir.

My family was dealt an unexpected blow nearly 26 years ago when our son Gunnar was diagnosed with cystic fibrosis, a debilitating genetic disease for which there is no cure. At the time, the diagnosis was akin to a death sentence because there were no approved treatments and most patients died before they turned 30.

Read more. 

Newer PostFinal ICER Report Leaves Cystic Fibrosis Community Uneasy
Older Post*** PRESS RELEASE *** CYSTIC FIBROSIS RESEARCH INC. STATEMENT ON ICER’S CYSTIC FIBROSIS EVIDENCE REPORT

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